• Palliative Care for leukodystrophies and other rare neurological diseases (pediatric focus)

    This presentation by Nicole I. Wolf from Amsterdam UMC focuses on comprehensive palliative care for children with leukodystrophies and rare neurological diseases. It highlights the critical role of a multidisciplinary team and transmural approach, emphasizing early involvement and home visits. The discussion covers managing common symptoms like spasticity, epilepsy, and feeding difficulties, alongside advanced treatments and end-of-life care planning for improved quality of life.

    Nicole Wolf Speaker: Nicole Wolf

    AdvancedLevel: Advanced

    2026Publication year: 2026

    Topics in this course:

    ERN RND ERN-RND Post-graduate curriculum ataxias ataxia Pediatric Palliative Care Leukodystrophy Neurological Diseases Rare Diseases Child Neurology